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Journal of the Korean Academy of Rehabilitation Medicine 2000;24(6):1070-1078.
Survey of the Demands of the Parents of Children with Cerebral Palsy.
Kim, Sei Joo , Lee, Eun Ha , Lee, Sang Heon , Park, Byung Kyou , Sung, In Young , Na, Jin Kyung
1Department of Rehabilitation Medicine, College of Medicine, Korea University.
2Department of Rehabilitation Medicine, Pusan National University College of Medicine.
3Department of Rehabilitation Medicine, University of Ulsan College of Medicine.
4Department of Rehabilitation Medicine, Korea Veterans Hospital.
뇌성마비아 부모의 욕구 조사
김세주, 이은하, 이상헌, 박병규1, 성인영2, 나진경3
2울산대학교 의과대학 재활의학교실, 3한국보훈병원 재활의학과, 고려대학교 의과대학 재활의학교실, 1부산대학교 의과대학 재활의학교실
Abstract

Objective
Because the treatment of children with cerebral palsy needs much time and efforts, the parents are suffering from longstanding treatment and financial problems. Home therapy based on the neurodevelopmental treatment strategy might help to solve these problems extending the time of treatment and helping carry over the effects of the treatment. The purpose of this study is to evaluate current difficulties in managing the children with cerebral palsy and needs of the parents, so that we can obtain a basic information to make the educational program for home therapy.


Method
A cross-sectional study was performed by questionnaire from the parents of cerebral palsy.


Results
The parents recognized the importance of home therapy and were enthusiastic to manage their children at home in 72.7%. However, 38.2% of the parents were lack of practical idea about the skill and knowledge of home therapy, and 51.7% had much burden about time and the expenses of the treatment.


Conclusion
The needs of home therapy for cerebral palsy by parents were high enough to develop the home program. Thus, practical program of home therapy with education of the parents can improve motor development of the children with cerebral palsy and reduce the time and expenses.

Key Words: Cerebral palsy, Home therapy, Neurodevelopmental treatment, Parental education


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